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RVing with Disabilities and General Health Issues Related Tips
MeandMyLabs

Clinton, Illinois

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Joined: 11/07/2008

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Posted: 08/15/09 05:40am Link  |  Quote  |  Print  |  Notify Moderator

avan,
Very interesting information. I will be on my guard.

Thank you.


2009 Jayco 19BH
2006 Ford Supercab XLT 5.4L
Yamaha 2400is
Camping Buddy-Caramel (chocolate lab)


T_Bone

Arizona

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Joined: 09/20/2001

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Posted: 08/15/09 08:14am Link  |  Quote  |  Print  |  Notify Moderator

Thanks Avan as it did sound like I had to have my cylinders refilled some where else.

I refill my own cylinders and edited my original post. I would never use the cylinders that someone else has to refill for me. What a PITA that would be as I boondock camp 100% of the time.





T_Bone
02 F350, 4x6, CC, DRW, PSD, 6spd, 3:73
32ft Serria 10yr 100% Solar
Please do not trust everything you read on the internet. Use only valid engineering information from well established Companys.
Buy UNION Work UNION
It pays off in the long run !

Chock Full o' Nuts

GA

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Joined: 02/02/2007

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Posted: 08/17/09 07:35pm Link  |  Quote  |  Print  |  Notify Moderator

my DH has stage 4 sarcoidosis, which has been very disabling.He spends a few weeks each year in the CCU. Camping is one of the few activities we can still do as a family. In fact, one of the reasons we went to a travel trailer was because his health was worsening. I can drive, hitch/unhitch, connect/disconnect, etc. DH is easily fatigued and it's nice for him that he can just go lie down. We carry his oxygen with us; he uses it to sleep or nap.

I would encourage you to give it a try. We used to be worried about "what might happen". Well, it *did* happen, in Las Vegas. He contracted pneumonia and became very ill. We got him the help he needed and we had to stay put for a week until he could travel again. It took several weeks for him to recover his energy--good thing I can manage the rig! The whole experience taught us to not hold back. There are ERs everywhere.


"Those who dwell...among the beauties and mysteries of the earth are never alone or weary of life."--Rachel Carson, environmentalist, 1956


philaura

Boise Idaho

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Joined: 03/01/2006

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Good Sam RV Club

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Posted: 08/28/09 02:58pm Link  |  Quote  |  Print  |  Notify Moderator

Don't let your disability stop you! There are great new portable oxygen devices available - some have already been mentioned.
After being on oxygen for three years and then having a single left lung translant in 2001 at Loyola University Medical Center in Maywood, Illinois, my wife and I got into RV'ing. Had I not been quite so sick pre-transplant, and if I had more money at the time, I would have loved to RV.
If there is a way to privately e-mail me, I would be delighted to give you my thoughts on traveling with O2 and future Lung Transplantation - that is when you are ready.
Phil in Boise


Nash 27 T pulled by a 2008 EC LB GMC 3500HD SLT 4x4 DMAX and Allison.

w6pea

Lost in the Smog of Mexifornia

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Posted: 11/10/09 11:01pm Link  |  Quote  |  Print  |  Notify Moderator

T Bone & Avan

You are both right about APRIA RIPOFF as I call them.


Remember "Without Truckers America Stops"
It's too late to save your shoes..so roll up your pant legs
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Hiker3

Florida

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Joined: 01/21/2007

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Posted: 11/11/09 04:53pm Link  |  Quote  |  Print  |  Notify Moderator

I have no advice, but I am sending best wishes for many happy trips for you.

Please continue to finds ways to enjoy your trailer -- as you can see, you are not alone.

Glad you shared your story, as this helps others who have not posted and may be reading this thread.

Take care. And see you out there!!


Livin Lite Quicksilver 8.0 (Folding Tent Camper) only 900 lbs!


emzee

california

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Joined: 10/22/2006

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Posted: 11/12/09 07:44pm Link  |  Quote  |  Print  |  Notify Moderator

what a nice bunch you all are!!! what great feedback. sounds like it's on, no holding back, enjoy yourself!

MeandMyLabs

Clinton, Illinois

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Posted: 11/13/09 03:49am Link  |  Quote  |  Print  |  Notify Moderator

Since my first post in August, I have been able to go on some small trips and I do have plans for future ones. I am able to take my O2 and even the home concentrator with me. Your advice has been very helpful for me to adapt to my new and somewhat "restricted" lifestyle and I am getting better about recognizing when is a good day and when is not.

It has really helped to read about other RV'ers experiences and how they are able to adapt. Thank you

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