javaseuf
Southern Cal
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Joined: 03/30/2005
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Well, our 19 year-old disabled daughter will most likely need a trach and it is a little scarey for us.
Does anyone here have one and how have you adapted to life with one?
THANKS!
Steve
2007 Springdale 291RKL
2003 F150 King Ranch
2001 Dodge Van w/Wheelchair Ramp
1991 Palomino Mustang PUP
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"Politically Incorrect And Proud Of It" 
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Campnfuls
Hilt, CA
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Joined: 10/18/2007
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I don't have any information about the procedure but just wanted to say my wife and I will pray for you and your daughter that all will work out well for her and your family. God bless you.
I want to leave this earth quietly in my sleep like my grandfather and not like the hysterical, screaming passengers riding in granddad's RV just before the big crash.
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javaseuf
Southern Cal
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Thank you. You can get up-dates and more info on our story HERE.
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trop-a-cal
Palm Coast Fl
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They are going to make it easier for her to breath. God be with her, and all of your family.
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Bumpyroad
Virginia
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after a "stent insertion" went wild, with build up of co2, they put in a trach tube and I ended up for 5 months hooking that up to O2 at night. My final one was metal, first one was plastic. The metal one was quite unpleasant when the weather got cold.
other than removing inner tube once or twice a day and cleaning it, no real maintenance.
PM me if you want further info.
bumpy
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Joy
Henderson KY 42420
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My uncle has lived with one for 30-40 years. Did very well. He had an appliance that helped make his speech more understandable but after losing 2-3 of them, he learned to "belch-talk" as he called it. Quite well, too!!
See ya' down the road!
Don-SCPO USN Ret.Corpsman
Joy-Ret.Off.Mgr.
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LIFE ISN'T ABOUT HOW TO SURVIVE THE STORM BUT HOW TO DANCE IN THE RAIN.
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mockturtle
Northwest
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Joined: 05/31/2005
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Are you asking about RV travel with a trach, or just in general?
As an RN I have cared for quite a few tracheostomies. Suction equipment will be required, at least initially, so electrical power is a must! Trach care should be learned by both you and your spouse (and your daughter, if she is capable). You will--I would hope--receive thorough instruction at the hospital and after you return home.
Husband: Derek
Dog: Bucky
RV: 2000 Aerolite 19RB TT
TV: 1996 Chevrolet Blazer 6 cyl. 4WD
This car used to be our toad, now is our TV!
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javaseuf
Southern Cal
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Thanks everyone.
We will eventually be camping with her and already use a suction machine as well as a nebulizer. She is severely disabled and can't do anything for herself. She is fed meds and nutrition via a G-tube port.
I do expect that my wife and I will be receiving some training.
Thanks Turtle.
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Bumpyroad
Virginia
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Joy wrote:My uncle has lived with one for 30-40 years. Did very well. He had an appliance that helped make his speech more understandable but after losing 2-3 of them, he learned to "belch-talk" as he called it. Quite well, too!!
my first plastic one had a valve for talking, named after the inventor but can't remember it, that stayed on all the time. My metal one had a piling plug that you needed to stick in or cover the hole with your finger to speak.
mine was virtually impossible for me to maintain by myself since I couldnt really look in a mirror and see where the flange had to be rotated to be in a release position. I considered painting a small red dot on it with finger nail polish so I could line it up myself.
bumpy
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Chuck & Lori
Grove City, PA 16127
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Joined: 09/06/2004
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my first plastic one had a valve for talking, named after the inventor but can't remember it...Probably a Passy-Muir valve.
http://www.upmc.com/HealthManagement/ManagingYourHealth/HealthReference/PatientEducation/B/#BreathingDisorders
The above link will take you to information on trach tubes and trach care. UPMC is the University of Pittsburgh Medical Center. I am a respiratory therapist at one of the UPMC hospitals. Feel free to PM me if you want.
Will your daughter be on a ventilator? Good luck, I hope this helps.
Chuck & Lori
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